Even on my best days I feel unsettled and disoriented. When I leave the house I check my purse several times to make sure I have everything — phone, keys, wallet — it’s all there. I go through a mental checklist, but I’m still uneasy. Then it hits me — It’s not something I’m missing, but someone.
I’ve written about how hard this time of year is for me. Seven years ago this month, my oldest son died from brain
cancer just when he was supposed to go into fifth grade. Each day that passes in August I feel my chest grow tighter and my nerves shorter. I can’t concentrate. I have flashbacks and PTSD. I brace myself for the 24th, and again two days later for when we buried him on the 26th. And then Childhood Cancer Awareness Month starts in September — but let’s be clear — I’m never not aware.
I followed the recent news story of a mother outside of Seattle so consumed by grief she refused to let go of her deceased baby for seventeen days. Medical professionals who observed her behavior said they’d never seen anything like it. They were worried for her health and even her survival. She neglected to eat. Her family never left her side. They tried to help, in fact, relatives took turns holding her baby so she wouldn’t starve or become exhausted. She became exhausted anyway, but still wouldn’t let go.
I understand this momma’s heartache. It doesn’t really matter that she’s a whale and I’m a person. Grief transcends species and manifests similarly among bereaved mothers.
Scientists wonder if the orca, named Tahlequah, actually experienced grief or if we humans projected the emotion onto her. The fancy word for this is anthropomorphism. Well, I’m no scientist but I don’t think I’m projecting. I think it’s arrogant to assume we are the only species capable of primal and even complex emotions. I recognize a sister in bereavement when I see one. I can’t deny Tahlequah the authenticity of her heartache, which was on obvious display for two-and-a-half weeks.
Like Tahlequah, I know what it’s like to not let go. I held onto my son for ninety-six days while he lay in a coma in the PICU at Children’s Hospital. At first he was minimally responsive to my voice and touch — his increased heart rate was his response. I passed long hours each day holding him and whispering I love you in his ear. Summer progressed and the tumor snaked throughout his brain, and eventually his vitals stopped indicating if he knew I was there. Still, I held him. I knew he would die when the cancer finally touched the part of his brain that controlled his heartbeat.
One morning in late August, a concerned social worker gently asked my husband and me why we thought our son was still here when he should have died months ago. I said, “For the love.” My words hung in the air when his heart rate monitor went silent and his lips turned gray.
I told my best friend I would have held him for another ninety-six days if I had the chance. She said, who are you kidding you would have done it forever.
It’s torture to never hug, kiss, touch, tickle or hold hands with my son again. No more wiped tears, kissed boo-boos, or counted freckles. High-fives, winks and pats on the back are gone. I can never crack his toes. His voice and (oh, god) his laugh — what can I say…
Some people might say I’m anthropomorphizing to think Tahlequah knew what she would lose when she finally let go of her baby, but I know there’s no other explanation to hold on like she did. It is a desperate and crazed way to prolong the inevitable — the real hell — that begins the next morning when you wake up without them.
It is now seven years after the first morning I woke up without him. I’m afraid still when I cry it will be impossible to stop. There’s a scientific myth that the cells in our bodies replace themselves every seven years, essentially making us different people from whom we were before. Except for neurons in the brain. Those don’t change. Those will hold my memories of my baby forever.
Now you’re taller than me. You have an adorable faint mustache, and your voice is in its Peter Brady phase. You used to have baby fat, but now you’re lean like a library ladder. It’s almost like you’ve become a different person overnight.
Cliche dictates most people in a midlife crisis buy a sportscar. Or they get divorced, have a makeover or fall in love with youth culture. I think a midlife crisis is the natural outcome from realizing more of your life is behind you than ahead. You think, This is it? But I haven’t ________________ yet. So you make decisions designed to shake things up. But here’s the irony about shaking things up — it teaches you what your limitations are and maturity comes from accepting limitations.
mean the exasperated/befuddled “what the fuck???!” I usually exclaim. I’m talking about fuck it/why not/what the fuck do I have to lose kind of attitude that is remarkably liberating. It enables me to try new things like this hobby called blogging, or sign up to be the oldest student in graduate school this coming fall.
Her name is Butterfly, she has purple hair and wears skirts. She is married to Brian and they live somewhere cold (I asked her to show me on a map and she pointed to Alaska). Her siblings are baby twin sisters named Bella and Rosy, and a baby brother named Junior. Brian likes to fish and they eat what he brings home. My daughter says she was seven years old when she lived with them. She doesn’t know why she had to leave and live with me. She claims to love me and Butterfly the same.
I’m oddly comforted when she talks about life with Butterfly. It gives me hope that maybe our souls, no matter where they travel in the world, never forget love. If that’s true, then my son will never forget me. My daughter’s fantastic tale about a possible past life makes me believe my deceased son could still remember me. His Butterfly.
For years our family lived in a huge sprawling city and so much of our lives wound up happening in our car. That car — a 2002 silver Mitsubishi Montero Sport — carried us through fifteen years of everyday errands and epic, cross-country road trips — oh, the amazing road trips! The spills and throw up and sand and mud and crumbs and stains! Plus the life moments and great conversations and arguments and plans!
Pushing Fifty and a Stroller 