- Wear enormous necklaces
- Roll my eyes at people
- Get a discount at IHOP
- Wear clogs as dress shoes
- Say non sequiturs
- Wear slippers to the grocery store
- Swim during the safety break
- Swear even more
- Call whippersnappers “sonny” and “doll face”
- Day drink
There was a long night while my son was in a coma in the PICU at Children’s Hospital when I couldn’t stop crying. I paced the halls, I stared out the window. I cried. I needed to talk to someone who knew how I felt. I had the phone number of a mom whose son had died from DIPG the year before. I didn’t know her beyond email. She said if I ever needed to talk she’d be there for me. So I called her.
She knew immediately how to talk to me. She said I could ask her anything. My first and only question was why didn’t you kill yourself after your son died? She paused. Said it was a very important question, one she’d given a great deal of thought. She gave me such a simple, personal and honest answer that I’ve replayed it in my mind a thousand times since.
She said DIPG took so much from her family. She reached a point where she wasn’t going to let it take one more thing. Not One More Thing.
I’m thinking about this now because I’m a few days away from the anniversary of my son’s diagnosis. There are a handful of days that are tied for the worst day of my life — my son’s death and burial, but also the day he slipped into a coma and the day he was diagnosed. Diagnosis Day was the day that changed everything. Our life got divided into Before and After. Problems got divided between before and after, the after ones being problems we never thought we’d have to deal with. For us, Christmas is Diagnosis Day, which is particularly horrible for my husband. He used to love Christmas.
The list of things that were taken from our family after my son’s death is unmeasurable. But it has to end somewhere. It ends with Not One More Thing.
- William Barr
- Ruth Bader Ginsburg’s health
- Timing a poached egg
- Running late
- Certain people
- Picking a restaurant
It was announced that Ted Nugent is headlining my local county fair this summer. He’s an aging 70s rock star who spouts hatred, misogyny, prejudice and alternative facts. I wrote a letter to the fair committee and said that after a decade of enjoying the event I won’t be bringing my kids this year. I’m disgusted that my community is hosting this a-hole. I’m pissed off. I’m…playing right into Ted Nugent’s hands.
Ted Nugent issued a statement in response to the controversy that said, “Only liars and America hating scumbags have a problem with me.” WTF? This pissed me off more. Then I get pissed about letting Ted Nugent piss me off. Then I think about how our culture is addicted to outrage, and how the media feeds our outrage, and I get even more pissed off at the whole circle of outrage…F-you, Ted Nugent, for setting me off.
The whole thing makes me feel like I should do more yoga and meditation. Then I feel guilty for not doing enough yoga and meditation. It’s exhausting. And I’m tired of feeling exhausted all the time. And this pisses me off all over again. Is this ironic? Or merely Alanis Morissette-ironic?
But then there’s the flip side. Let me switch gears for a moment. I’m also hopeful about certain things. Like my kids. They calm me and ground me. They are my hope and joy. I’m excited to watch them navigate toward their goals despite the inevitable obstacles and frustrations they will face. I’m excited when my son talks about politics – he’s twelve and he’s into politics! He wants to make the world a better place. (He also wants to play Fortnite all the time, but oh well.)
The smile on my daughter’s face is brilliant. It fills my heart. I love watching her think. It’s like magic. The greatest thing about being a mom is the love. There’s nothing like it. The worst part is the worry. It never ends.
Which brings me to my fears. Loss is my biggest anguish. Although loss is a normal part of life — we lose our keys, hair, money, friends, jobs, our way — some of us lose our children and that’s irreparable. The loss of my oldest son keeps me up at night and it’s why I live in two worlds at once. But I would still do everything the same even if I knew having him would end with loss — I would still suffer the enormous heartbreak if I could be his mom again. And I would move time and space to make it happen.
If I were a superhero, I’d be “Improbable Girl” and my costume would be flannel pajama pants with a t-shirt. It’s not sexy or intimidating, and the name — Improbable Girl — doesn’t even have a nice ring to it.
But it suits me.
I’m not your typical superhero that accomplishes the impossible. No, my superhero alter-ego achieves the improbable. I am armed with strength to face the unlikely events and circumstances of my life and keep going. Keeping going, aka, resilience, is Improbable Girl’s biggest superpower. That, and dressing comfortably.
Which brings me to writing.
For a long time I wrote mostly in journals. I filled volumes of unlined pages but couldn’t admit out loud that I wanted to be a “real” writer. Why? Success seemed impossible. Eventually, I let writing go.
Then something amazing happened – I finally realized what Popeye was talking about when he said, “I yam what I yam.” I also stopped caring about the wrong things, like fear of failure, and replaced it with a “fuck it, why not” attitude that is remarkably liberating.
Since adopting my new attitude toward writing (and life in general) I’ve been published, hired for jobs, and won awards as a blogger and screenwriter. I learned that being a writer isn’t impossible. It’s just merely improbable.
I write stories about ordinary people who summon the courage to make extraordinary changes in their lives, and illuminate how people navigate through smaller moments that are no less dramatic to them. I seek to express my character’s intimate moments, their vulnerability and flashes of insight that alter their choices.
My life experience taught me about love, loss, grief, reinvention and resilience and these are the themes I am most interested in exploring in my writing. And I hope to do it with humor and depth.
And comfortable clothes.
I’m eleven. I’m sitting on the floor in a dressing room at Marshall Fields, Skokie, looking for straight pins stuck in the ivory shag carpet. This is what I do to pass the endless hours while my mother works her way through a pile of skirt suits from the sale rack. Back then, my mother has only two weaknesses — pecan pie from Poppin’ Fresh and the sale rack at Marshall Fields. She has no willpower in the presence of either.
My mother buys skirt suits to wear to Temple on Friday nights. She is sophisticated and business-like and elegant. My outfit for services is a lavender plaid A-line skirt, a matching lavender fuzzy sweater and chestnut leather zip-up boots with a chunky heel, all from Marshall Fields. I wear this same outfit nearly every Friday.
As an adult, when I have insomnia, I like to walk through certain places in my mind. I imagine I’m in my childhood elementary school, where I pass through florescent-lit hallways, the gymnasium, and cafeteria. By the time I arrive at the outside playground, I’m asleep. Other times I walk through my childhood Temple. I open doors, look behind curtains. I know every shortcut in the entire building, and I take them. I go to the choir room, the kitchen, the teen hangout with the broken foosball table, and the other kitchen. I stop by the office where I see photos of smiling Hebrew school students on the wall.
When I don’t walk through my grade school or Temple, my mind heads to the mall of my youth, Old Orchard, where I stroll through Marshall Fields. Not the kids department — but the racks of women’s ready-to-wear and sportswear because I’m shopping with my mother. We walk the racks together in search of bargains in my imagination.
My mom passed away from cancer when I was seventeen. She had been ill for three years prior, and, obviously, we didn’t do much shopping during that time. Shopping may seem frivolous, but it was her happy place. She’d relax while she methodically slid hangers across the metal bar, one after another, then was rewarded once she’d find a seriously marked down treasure. Some mothers pass down heirlooms, or beauty, or property. My mother passed to me her meditation ritual called shopping. My sister, on the other hand, is shopping-averse. She has anxiety in stores and hates to try things on. She’d rather be at the dentist than in a fitting room, and she thinks this is from endless hours spent waiting in the dressing room at Marshall Fields. To cope, she whined rather than give up and count straight pins.
Years later, there is no such thing as Marshall Fields anymore, and this makes me sad. When I feel nostalgic, I sometimes wander around Macy’s (who took over the store) but it’s not the same. They sell Frangos, but the candy tastes different. I visit the Estee Lauder counter and smell the scent of the face cream my mother wore. Or maybe I scoop up a pile of clothes from the sale rack and lock myself in a fitting room for way too long. I take my time while I look for a great outfit, but I will only buy it if it’s on sale. I am, after all, Elaine’s daughter.
I have my own daughter now, who is a great little shopping partner, but I don’t take her to Macy’s or even the mall. Instead, our favorite shopping is at thrift stores. I’d rather spend time with her eye-balling racks of random things in search of something worth buying than be overwhelmed at a sprawling department store. I like that she learns discernment, recycling and patience at a thrift store. And hopefully, how to get lost in her own thoughts.
- Bereaved Mom
- Great Aunt
- Breast Cancer Survivor